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Bringing Europe together to tackle Lynch syndrome

The PREDI-LYNCH project kicks off in Heidelberg.

Large group photo of attendees at a professional conference, taken outdoors in front of a modern building with signage reading "The DJNGL No9." The group consists of men and women of diverse ages, all wearing conference lanyards and name badges. The participants are smiling and standing or kneeling on a grassy area under bright daylight, with large white umbrellas and patio furniture visible behind them. The setting suggests a collaborative networking event or workshop, likely related to healthcare, science, or research, based on the formal attire and context. Keywords: conference group photo, professional networking event, research consortium gathering, healthcare collaboration, scientific workshop, outdoor corporate event, team photo, PREDI-LYNCH project.
Over 50 researchers, clinicians, and partners from across Europe came together in Heidelberg, Germany, to strengthen collaboration on advancing early detection and prevention strategies for Lynch syndrome–related cancers. All photos: Oslo Cancer Cluster
Published

Sep 22, 2025

Author

Dave Tippett

Category
EU

The PREDI-LYNCH consortium officially launched its six-year Horizon Europe project with an in-person kick-off meeting in Heidelberg on September 18, 2025.

The event brought together over 50 researchers, clinicians, and partners from across Europe. Oslo Cancer cluster is one of the partners in the research and innovation project, wich consists of a consortium of 28 partners from 16 European countries.

Uniting leading institutions

Funded under the EU Mission on Cancer, PREDI-LYNCH unites leading institutions and experts to improve screening, diagnostics, and risk prediction for individuals with a hereditary predisposition to cancer. The project combines clinical research, data science, innovation, and stakeholder engagement to build scalable solutions that can be implemented in health systems across Europe.

Lynch syndrome is an inherited condition that increases a person’s risk of developing colorectal, endometrial, and several other cancers, often at a younger age than the general population. It’s one of the most common hereditary cancer syndromes, affecting about 1 in 300 people, yet many remain undiagnosed.

Early detection and tailored prevention can make a major difference for those living with the condition and their families.

A woman stands at the front of a conference room holding a microphone and speaking to an audience seated in rows. A presentation slide titled “Content” is projected behind her, listing topics such as governance structure, project work plan, deliverables, and communication. Attendees, many with laptops or notepads, are attentively listening. Sunlight streams through large windows in the background.
Project Coordinator Mev Domingez welcomes the partners to the Kick Off Day in Heidelberg.

Meeting face to face for the first time gave the international consortium an important opportunity to build connections, align on project goals, and set the foundation for close cooperation in the years ahead.

“This is a long and complex journey that requires trust, dialogue, and shared commitment. Being together in person is essential for building that common ground,” said project coordinator Mev Dominguez Valentin from Oslo University Hospital.

From ethics to liquid biopsies

The program featured presentations from each work package, covering topics such as ethics and legal frameworks, liquid biopsies for Lynch syndrome cancers, validation of detection tests in multicenter trials, new early-detection modalities, and the integration of advanced AI-based risk prediction models.

Sessions also addressed health economics, data management, dissemination strategies, and sample logistics.

A man in a white shirt with a conference lanyard holds a microphone and presents in front of a large screen during a professional event. The presentation slide on display is titled "Implementation activities since May" and focuses on "T9.2 Communications materials and activities" for the PREDI-LYNCH project. Bullet points on the slide include updates on the project logo, slide deck template, LinkedIn channel, website (https://predi-lynch.eu/ ), dissemination contact list, and newsletter planning. The slide includes the PREDI-LYNCH logo, a DNA double helix icon, and an image of healthcare professionals working in a lab. Audience members are visible in the foreground, seated and listening attentively. The event appears to take place in a modern venue with large windows offering a view of a hilly, green landscape. Keywords: PREDI-LYNCH presentation, medical research conference, Lynch syndrome awareness, project communication strategy, healthcare innovation, scientific dissemination, professional speaker, public health event.
Adam Lukas presenting the plan for one of the Work Packages in the project.

Purpose: accelerate

A post-event social activity organized by Oslo Cancer Cluster rounded off the day, underlining the value of community building in a project that spans countries, institutions, and disciplines.

With the Heidelberg meeting now concluded, the PREDI-LYNCH consortium is moving forward with a shared sense of purpose: to accelerate research and deliver practical tools that will help clinicians, patients, and families affected by Lynch syndrome.

More about PREDI-LYNCH on our project page.

Seminar in Oslo coming up

14 October at 17.00-20.00 there will be a seminar about Lynch Syndrome and the Predi-Lynch project at the Norwegian Cancer Society in Oslo. Please follow this link from the Norwegian Cancer Society to sign up. To see the programme, please visit the Facebook event.

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Bringing Europe together to tackle Lynch syndrome